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The Child With a Spinal Cord Injury
by Randal R. Betz (Editor), M. J. Mulcahey (Editor), American Academy of Orthopaedic Surgeons, Shriners Hospitals for Crippled Children Symposium
Aims to provide a contemporary review of pediatric SCIs in order to disseminate standards for optimal care of affected children and adolescents, identify areas of deficient knowledge, and encourage research. Contains 68 contributions in sections on etiology and prevention, management, medical issues, orthopedic problems, upper extremity management, rehabilitation, discharge and transition, habilitation, research and technological applications, and special considerations. NOTE: Special order and may require an additional charge as a "hard to find" publication.
 Reflections from a Different Journey : What Adults with Disabilities Wish All Parents Knew
by Stanley Klein, John Kemp
Reflections from a Different Journey presents 40 stories by successful adults who grew up with disabilities. They provide insights into what it is like to persevere in the face of community prejudices, and what it takes for families and children with disabilities to work together toward fulfillment. While there are many books for parents on raising a child with a disability, this is the first to help them learn from people with disabilities, and to help children face the unique challenges and rewards of growing up with a disability. Reflections from a Different Journey will also encourage and inspire older children and adults with disabilities, other family members, and education and health care professionals who serve these families.
Spinal Cord Injuries in Children
by James E. Wilberger
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Pediatric Spinal Cord Injury
by Wise Young, Ph.D., M.D., W. M. Keck Center for Collaborative Neuroscience Rutgers University
Literature review of the emergency care, acute complications, chronic complications, and functional recovery in children with spinal cord injury. The abstracts of the cited papers are included because they indicate clinical centers that are experienced in pediatric spinal cord injury care. This is a downloadable PDF file - 52 pages.
Physical Therapy for Children
by Suzanne Campbell, Darl W. Vander Linden, Robert Palisano (Editors)
Text for physical therapists on treating children. Emphasizes the prevention of disability and the successful transition to adulthood.
 When Your Child Is Seriously Injured
by Marilyn Lash
This book is written in an easy to read format and discusses the emotional impact that injury, disability, or loss can have on every member of a family. Topics covered include preparing for hospital visits, reaction to loss, helping siblings, and coping.
 Lets Talk About It: Extraordinary Friends
by Fred Rogers, Jim Judkis
Written for the child without special needs--the child with the questions--this book opens up a difficult subject to discussion. Mister Rogers challenges the stereotypes that often plague children with special needs and celebrates six children who are extraordinary friends. Share this book with all children--to spark communication, to attack the stigma, to bridge the gap between children with different abilities. Mister Rogers is the perfect person to write a book like this, with respect and the same gentleness that has characterized his television show for decades. "Rogers offers caring support and validation...Books that offer such honest reassurance are rare."
 Don't Call Me Special: A First Look at Disability
by Pat Thomas, Lesley Harker
This delightful picture book explores questions and concerns about physical disabilities in a simple and reassuring way. Younger children can find out about individual disabilities, special equipment that is available to help the disabled, and how people of all ages can deal with disabilities and live happy and full lives. Titles in this series for younger children explore emotional issues that boys and girls encounter as part of the growing-up process. Books are focused to appeal to kids of preschool through early school age. Written by psychotherapist and counselor Pat Thomas, A First Look At books promote positive interaction among children, parents, and teachers, and encourage kids to ask questions and confront social and emotional questions that sometimes present problems. Books feature appealing full-color illustrations on every page plus a page of advice to parents and teachers.
 Rolling Along With Goldilocks and the Three Bears
by Cindy Meyers, Carol Morgan
This picture book is an adaptation of Goldilocks and the Three Bears, the classic folktale retold with a special-needs twist. Children will find all of the familiar characters and scenes from the original story, as well as a few surprises-Baby Bear uses a wheelchair, goes to physical therapy while his porridge cools, and ultimately makes friends with Goldilocks. This new version is especially appealing to children with physical disabilities. It's also an entertaining tale for all children, with or without special needs.
Taking Charge: Teenagers Talk About Life & Physical Disabilities
by Kay Harris Kriegsman, Elinor L. Zaslow, Jennifer D'Zmura-Rechsteiner
Discusses such topics as independence, self-esteem, relationships, and sexuality from the perspective of teenagers with various physical disabilities.
Financial Aid for the Disabled & Their Families, 2004-2006
by Gail Ann Schlachter, R. David Weber
More than 900 scholarships, loans, grants, awards and internships for people with disabilities or their family members.
 Dewey Doo-it Helps Owlie Fly Again
by Brahm Wenger and Alan Green
The first children's story inspired by Christopher Reeve and his heroic battle to overcome paralysis. Wenger and Green's clever, beautifully drawn picture book teaches kids to be kind and compassionate. The book, for children ages 3 to 7, includes a CD with nine original songs performed by Bernadette Peters and Mandy Patinkin, who narrates the CD as well. The CD also features a special performance by Dana Reeve. A portion of the profits from Dewey Doo-it Helps Owlie Fly Again is being donated to Christopher Reeve Paralysis Foundation.
Publications for Parents WITH A DISABILITY
Adaptive Baby Care Equipment: Guidelines, Prototypes & Resources
This publication is presented as a catalyst for problem-solving regarding the development of adaptive baby care equipment. This newest publication is designed for parents, family members and professionals. It includes: guidelines for problem-solving baby care barriers; photographs and descriptions of prototypes and resources for adaptive baby care equipment; adaptive baby care techniques; adaptive baby care equipment checklist; commercial product safety commission guidelines; and local and national resources.
Assistive Technology and Parenting: Continuation of Adaptive Parenting Equipment Development
The report is based on a multi-year research project to design, develop and modify adaptive parenting equipment and techniques for parents with physical disabilities, as well as to test and refine measures to assess the impact of adaptive babycare equipment. "Equipment development and its assessment can significantly impact the individual parent, the profession of occupational therapy, and the disability community. Specifically, the equipment allows the parent with a disability to assume a more active parenting role which can enhance parental confidence in parenting, the parent-child relationship, and the family unit."
Babycare Assistive Technology for Parents with Physical Disabilities: Relational, Systems & Cultural Perspectives
This article provides an overview of the baby care assistive technology work at Through the Looking Glass including a discussion of TLG's intervention model, the impact of babycare equipment and guidelines for equipment development. "For many individuals with disabilities becoming a parent can be thought of as the last frontier to conquer with respect to accessibility and equal rights. Babycare assistive technology allows parents with physical disabilities more choices in how they are involved in their baby's care, through the elimination or decrease of barriers in the environment."
 Parenting and Disability: Disabled Parents' Experiences of Raising Children
by Richard Olsen, Harriet Clarke
 Disabled Parents: Dispelling the Myths
by Michele Wates
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